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Showing posts from December, 2024

Merry holidays

Happy holidays…It’s surprising to find that it’s aaltradt Christmas Eve; I expected to be at home!  But iy’s fine.  They are taking good care of me and I don’t have to worry about anything  my sisters will be here next week and i am excited. We are hopeful that this is respite care and u treat it like that  excuse any errors, please as I’m trying text to speech and i have lots of of corrections. A short note but full of good wishes;  take care  Good night

Hospice

 The staff here are really lovely They do a great job of looking after me. They do a wonderful job of ensuring that improve cared for.  I’m happy with them, My sister surprised me with a visit to check on the facility and we had a short time together but fun.  I had a couple of bad days which are improving. That meant several nights of no sleep so it’s starting to improve. Short note but I’ll update when I have more energy. Good night 

Update

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This scarecrow is me, taken about 5 minutes ago.  I’ve had to be admitted urgently to the hospice, and that required my doctors to be as persuasive as possible while I argued to avoid this fate.  However, I was not doing well at home, and I couldn’t walk more than a few steps, I wasn’t eating a lot and struggled to breathe; made worse trying to find a spot that was comfortable for me to sit without aggravating the sore on my back.  The room is private, fairly large and I’m in the bed.   I felt bad leaving Don; he barely had time to register that I was going before the transport guys were wheeling me out on a stretcher.  Jerry is very annoyed and wouldn’t stop barking… but anyway, they got me here, installed me, and I’m ok.  The staff have all been very kind and helpful, and they seem very committed to ensuring that I’m well cared for.  We hope that a few days of rest and food on demand will make a difference to my recovery. Meanwhile, though, I’m in ro...

Gasp…

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This will be short. I’ve been struggling for the past week trying to breathe and walk around  I’m very weak and I’m tending to be in bed more often.  Not sleeping, just trying to be comfortable  I can manage to walk the 12 steps from my bed to the bathroom, and after a couple of minutes, walk back and collapse.  If I walk to the chair in the living room (32 steps) it feels like a marathon and I need a longer rest before I can eat/ talk/ drink… Poor Don is doing what he can to look after me but I’m causing him distress and pain  I feel awful for that. Jerry eagerly waits for me to come out and plants himself on my lap for as long as I can stay out.  My friends have been working on feeding me, for which I’m grateful and I’m doing my best to eat as much as possible.  I admit that my worker made me a scrambled egg on toast, but I only ate half.  I had some soup with dumplings and some TT pelau!! Lovely lady who makes meals twice a week. I’m lying down...

December

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I know that I’ve been offline for over 10 days, and I do apologize for worrying everyone.  I’ve been having difficulty moving and breathing for a while, and I’ve been going to bed as early as 6pm trying to regain some energy.  It hasn’t been easy at all.  I did a blood transfusion yesterday, and I will confess that I was absolutely terrified as I couldn’t walk to my elevator — about 40 steps - and I was out of breath.  My friend tried to push me on the walker, which was partly successful, and poured me into a wheelchair as we arrived at the hospital.  Afterwards I was able to walk inside, and today I’ve been able to move fairly comfortably although I’m still struggling to breathe easily.  I made myself a promise not to wait so long next time to request blood; I can feel the change, so I’m hoping to stay ahead of it.  I know that this is an indication of upcoming difficult conversations that I’d like to delay! I’m eating, and my lovely sister-friend dro...